Immune Deficiency Foundation

Immune Deficiency Foundation

CHARITY STORY
Mom’s Common Variable Immune Deficiency Diagnosis Explains Lifelong Infections and Fatigue
Photo Caption
Susan Day is surrounded by her family, from left, son Jackson, husband Jason, and son Jace.
Photo Credit
Immune Deficiency Foundation

When Susan took her son to the immunologist, the doctor observed his mother’s symptoms – fatigue, sore throat, fever, and frequent infections, and ordered bloodwork. Results revealed common variable immune deficiency (CVID), the most frequently diagnosed primary immunodeficiency (PI).

Next, she researched PI and sought resources for help through this unfamiliar condition. She discovered the Immune Deficiency Foundation (IDF) and requested assistance from IDF’s Peer Mentor program, attended IDF education and support group meetings, and served as an IDF plasma ambassador.

Talking with others who have PI through IDF helped normalize the condition, and Susan became more involved as an IDF Peer Mentor and IDF Get Connected Group Leader.

Read Susan’s story here: https://bit.ly/3Mo8P4f

CHARITY VIDEO
Portal of Hope
Transcript

0:00
Narrator: Primary immunodeficiencies are a group of more than four hundred and fifty

0:03
rare, chronic disorders in which part of the body's immune system is missing or functions

0:08
Improperly.

0:09
At IDF, it's our mission to improve the diagnosis, treatment, and quality of life of people living

0:15
with primary immunodeficiency.

0:17
But some of the most daunting tasks before us lie in reaching those who don't yet know

0:22
they have a primary immunodeficiency.

0:23
Jorey Berry: Studies estimate that between seventy to ninety percent of people worldwide

0:30
with a primary immunodeficiency do not have a diagnosis.

0:35
When I visit with members of our community, almost without exception, I'll be told that

0:40
it wasn't until an IDF event that they met someone for the first time -- ever -- with

0:46
their condition.

0:48
For everyone affected by PI, IDF is a portal of hope, connection, and solutions.

Immune Deficiency Foundation
CFC Number
66309

Charity Type

Cause Area

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