A lot of rare diseases are without cure, especially children’s rare diseases. A lot of them did not get enough funding and research attention because of their rare status. The Children’s Rare Disease Organization tries to help the doctors and researchers to continue their research in the field to identify the cause, mechanism, and potential treatment for these diseases. Please join us to advance the understanding and treatment for the Children’s Rare Diseases. Your help means a lot to those families and children. We thank CFC for this opportunity to get recognized and thank all the federal employees for your support!! Our CFC code is 89699.
Children's Rare Disease Organization Inc
Children's Rare Disease Organization Inc
CHARITY STORY
Help to Fight for Children's Rare Diseases
Photo Caption
The Organization promotes research of rare children's disease and fund research labs and organizations in the U.S. Care for all children with rare diseases Many Children are living with a rare disease.
CHARITY VIDEO
Help to Fight for Children's Rare Diseases
Transcript
Did you know, a lot of rare diseases do not have a cure, let alone that of children’s diseases? That a lot of them do not receive enough funding and research attention because of their rare status?
The Children’s Rare Disease Organization aims to help doctors and researchers to identify the causes, mechanisms, and potential treatments for these diseases. Please join us to further advance in the understanding for the Children’s Rare Diseases. Your help means a lot to those families and children.
We thank CFC for this opportunity to get recognized and thank all the federal employees for your support!! Our CFC code is 89699.
Together, we can aid in the findings and progression of such diseases. 。Please hear what our funded professors and doctors are saying:
Dr. Alexander Kroemer, Pediatric Surgeon of Georgetown University Hospital.
Medstar Georgetown Transplant Institute
By delving deep into the cellular and molecular pathways of liver inflammation and fibrosis, our research, supported by CRDO, doesn't just aim to improve transplant outcomes. A deeper understanding of these pathways offers the potential to develop treatments that can intervene much earlier in disease progression. Ideally, by targeting the root causes and mechanisms, we aspire to reduce, or even eliminate, the need for transplants in the future. Our holistic approach is about enhancing quality of life today while striving for preventative solutions for tomorrow.
Dr. Sarah Taylor of University of Colorado
Children's Hospital Colorado Anschutz Medical Campus
Our research supported by CRDO aims to define the immune-metabolic pathways that regulate disease progression in pediatric cholestatic liver disease, particularly biliary atresia. Identifying metabolites responsible for promoting a more favorable immune environment in biliary atresia may help identify novel therapeutic targets. Our team pursues parallel research studies in human samples and mouse models to allow translation of our findings back to the bedside, with the ultimate goal to improve patient outcomes.
Join us in the fight for our children’s future, they are the American future. Our CFC number is 89699.
Children's Rare Disease Organization Inc
CFC Number
89699
