“Living with chronic granulomatous disease (CGD) has helped me become who I am. I’ve learned more responsibility,” said Casey, who was diagnosed with CGD, a primary immunodeficiency, at four months old.
IDF played an important role in providing a sense of community for Casey, especially during his youth. He served on the IDF Teen Council, which eased the feeling of isolation, attended conferences, and recorded a Reel Story in which he discusses his journey with CGD.
“Once I started serving on the IDF Teen Council, I loved it. The friendships I made on the council and with IDF, I still maintain today,” he said.
Inspired by his experience with IDF, Casey is a patient peer mentor these days and often speaks to individuals and families with CGD.
